About

Ehlers-Danlos Syndrome (EDS) is a genetic connective tissue disorder. Connective tissue is the glue that holds your body together, and for people with EDS, it’s faulty. While connective tissue is all over the body and can cause problems anywhere, and there are several types of EDS, the hallmark feature of my zebra’s type (Hypermobility/ Type 3) is dislocating and subluxating joints. Basically, while it would take a trauma for most peoples joints to pop out of place (dislocate) or partially pop out (subluxate), my teenage daughters joints  do it all of the time. As you can imagine, that makes life a little more difficult for her. And for me. We wanted to share our journey to help others out there who are going through the same things. So whether you are part of the herd, or just curious, feel free to stick around and learn more about zebra life.

 

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