Damn Dehydration

  My zebras gastroparesis has been acting up pretty much non-stop for months. I’m afraid we’re finally at the point we’ve been afraid of: when the flare doesn’t stop and it’s just the new normal. She’s had a few good days here and there, but for the most part she’s struggling, especially with thin liquids….

Battle Weary

I. Am. Tired. I’m under the weather so I’m extra tired physically, but that’s not the kind of tired I’m talking about. I am emotionally and mentally drained. I had my meltdown from all the stress and now all that’s left after purging all the thing I shoved down to keep it together/look calm to…

Hello, Goodbye…Revolving Geneticists

Our old geneticist went to another hospital in another state. I can’t say we were sad to see him go. He made some uber creepy comments and we weren’t at all comfortable with him or his comments about boys only wanting my daughter for sex and how she “didn’t look 13”. (At her first visit.)…

Doctors, and Labs, and PT, Oh My!

For other zebras, days like these sound very familiar. My zebra, like many others, has several other health issues that are found more commonly in EDS or are part of her EDS. So on top of the EDS itself, she has Neuropathy, Secondary Adrenal Insufficiency, Autoimmune Thyroid Disease (aka Hashimoto’s), ¬†and Gastroparesis. Thankfully the latter…