Part-Time Wheelchair User

 Our daughter is a speed demon in Eddie, her wheelchair affectionately named after her EDS. She often gives her Dad and I mini heart attacks with her speed, trying to “drift” like she’s in a Fast and Furious movie, and popping wheelies. On the one hand, we’re glad she can have fun doing anything, including…

Doctors, and Labs, and PT, Oh My!

For other zebras, days like these sound very familiar. My zebra, like many others, has several other health issues that are found more commonly in EDS or are part of her EDS. So on top of the EDS itself, she has Neuropathy, Secondary Adrenal Insufficiency, Autoimmune Thyroid Disease (aka Hashimoto’s),  and Gastroparesis. Thankfully the latter…